10 March 2010
What Is Next
I am not entirely sure what is next. I know that the VA has pretty much washed their hands of me. Unfortunately, that is my healthcare right now. I am okay with the fact that there is not going to be any huge jumps forward in my condition. I have accepted that.
What I cannot accept is that there is so little information out there and nothing helpful out there. I have decided that this must be my calling in all of this. I am going to start putting together information about EDS and what you can do for it all in one place. I will also put info about what others have tried and what has worked for them. Maybe even a list of good docs? This is just my dream right now...hopefully I will be able to afford to run a website one day and have it help everyone. Money is too tight right now, but we shall see.