Having just been diagnosed with Ehlers-Dansol Syndrome, I am in need of an outlet to share my ups and downs. This may not be a daily blog, but I want to share. I am 34 yrs old and have been told I will live with chronic pain and chance of joint dislocation for the rest of my life.
28 September 2010
Done
I have deleted a post from yesterday.....it obviously upset someone. Not that I really care what this person thinks, but it is just easier to let it go.
It is sad to loose a friend in such a way. I am, however, finished with it all.
Hi. I am trying to find a doctor who can diagnosis my daughter. I believe she may have ehlers Danlos. Who Knows I may have some variation myself. Do you know how or who we should go to? I will travel if neccessary. My daughter is 12 and we live in San Antonio Texas.
Hi. I am trying to find a doctor who can diagnosis my daughter. I believe she may have ehlers Danlos. Who Knows I may have some variation myself. Do you know how or who we should go to? I will travel if neccessary. My daughter is 12 and we live in San Antonio Texas.
ReplyDeleteSorry whatever happened happened but if someone is causing you pain and drama, let them go their own way. See ya tomorrow!!
ReplyDeleteSweetie - just let it go. You do not need that stress and drama in your life, no one does!
ReplyDelete