Having just been diagnosed with Ehlers-Dansol Syndrome, I am in need of an outlet to share my ups and downs. This may not be a daily blog, but I want to share. I am 34 yrs old and have been told I will live with chronic pain and chance of joint dislocation for the rest of my life.
09 January 2010
Anything to help the Pain
Why is it that I cannot find anything to even touch the pain? My knee hurts and I just want to feel semi normal. Right now I can barely walk. I am trying to be positive, but I am not sure I can wait until March 3rd for more information on how to handle this. I know I have to live with this pain, but really, can't we make it more manageable?
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