Tonight I am going out my friend Becki for my birthday. I am happy to be going out with a great friend, but it reminds me again of my age.
I know that 36 is not that old, which is part of the problem. It makes me kinda sad that my body is giving out so quickly at such a young age. I have good days and bad days, but it is still hard. The surgery coming up is a bright light in my life. I am truly hoping that it will help with stability and pain. My shoulder is my most troubling problem right now. I am hoping it will not be so bad soon and then I will have minuet things to worry about. Popping and cracking has become daily parts of my life. I have not been dislocating every joint, which is a relief. My shoulder dislocates every day. I think that once I get it fixed, I will be alright for awhile.
36 is not a big deal. It just pains me to be so young with two young children and having limitations on what I can do. Not only with my kids, but everyday things too. I am still learning what I can and cannot do. Oh well! It is what it is.....just gotta figure it out.
24 August 2011
22 August 2011
Clean toliets
I can tell I am getting ready mentally for my surgery. It is kinda like nesting before having a baby. The living room got a total once over.....under the couch and fire place cleaned too.
Today I spent 2 hours cleaning the 2 bathrooms upstairs. I am hoping to get the one downstairs done today. I am thinking if I give everything a good once over before my surgery then, it won't be near as bad when I don't get to it for the 6 weeks I cannot do much.
Tomorrow my room gets a good cleaning. The kitchen is semi-clean and I have some time to get that done. 10 more days of nesting....at least the house will be clean.
Today I spent 2 hours cleaning the 2 bathrooms upstairs. I am hoping to get the one downstairs done today. I am thinking if I give everything a good once over before my surgery then, it won't be near as bad when I don't get to it for the 6 weeks I cannot do much.
Tomorrow my room gets a good cleaning. The kitchen is semi-clean and I have some time to get that done. 10 more days of nesting....at least the house will be clean.
21 August 2011
Catch up
It has been several months (okay quiet a few months) since I have posted here. It has been an amazing year....mostly down, but that is okay. It always makes you stronger.
About a month ago, I thought I was having a heart attack. It was the most painful thing I have ever felt. My chest just hurt. I did go to the ER and of course as soon as the ER doc realized that I had EDS there was a battery of tests. I was happy to find a doc that knew what it was, but was scared by all the tests. I was told that there were some serious things it could be. I could have had a bleed in my heart or a tear. It was a scared bit while they did all the tests. In the end it was not anything serious....well, in comparison. I was told that it was costo condritis.....basically with EDS the cartilage does not renew itself quickly because of the collagen problems. So, my ribs were pulling away from my breast bone. PAINFUL! Turns out there is nothing they can so for it. Takes time to heal and even longer for me. Horrible 2 weeks of pain and very little activity.
On the 1st of September I am going to have shoulder surgery. My right shoulder has been dislocating frequently. I finally found an orthopedic doctor who knows EDS and has done surgery on others with EDS. Dr. Wienstien has done 10 other shoulder surgeries on folks with EDS, with a fairly decent rate of success. I am pleased to have him doing it......he is also the doctor for the Olympic basket ball team and the Colorado College hockey team. I am so lucky to have fallen into this. He only takes referrals and I am so thrilled.
I am terrified to have the surgery. It is a scary thing for me. I am not looking forward to having them cut me open. No, really cutting. They are not going to be able to do the arthroscopic surgery they usually do. The doctor is going to have to cut open my shoulder. Actually, it will be in my arm pit but there will be a scar on the front too. Cutting anyone with EDS open is dangerous because of the lack of collagen reproduction at a normal rate. So, it will take longer for my cut to heal....not to mention the actual shoulder work. I have been told that I will be in my arm "thing" for at least 6 weeks and the physical therapy will be longer. I have read some accounts that say it takes more than a full year to get all of the motion back and some still have pain.
At this point, I am scared to do it, but hoping this will help. I was told that if I don't do it, I will have pain and it will get worse. If I do it, then there is a chance at a better life with my shoulder and pain. Hopefully it will be for the better, but I am sure it will not be worse.
I will check back in as I get closer to the day. I am scared and will be looking for support here.
About a month ago, I thought I was having a heart attack. It was the most painful thing I have ever felt. My chest just hurt. I did go to the ER and of course as soon as the ER doc realized that I had EDS there was a battery of tests. I was happy to find a doc that knew what it was, but was scared by all the tests. I was told that there were some serious things it could be. I could have had a bleed in my heart or a tear. It was a scared bit while they did all the tests. In the end it was not anything serious....well, in comparison. I was told that it was costo condritis.....basically with EDS the cartilage does not renew itself quickly because of the collagen problems. So, my ribs were pulling away from my breast bone. PAINFUL! Turns out there is nothing they can so for it. Takes time to heal and even longer for me. Horrible 2 weeks of pain and very little activity.
On the 1st of September I am going to have shoulder surgery. My right shoulder has been dislocating frequently. I finally found an orthopedic doctor who knows EDS and has done surgery on others with EDS. Dr. Wienstien has done 10 other shoulder surgeries on folks with EDS, with a fairly decent rate of success. I am pleased to have him doing it......he is also the doctor for the Olympic basket ball team and the Colorado College hockey team. I am so lucky to have fallen into this. He only takes referrals and I am so thrilled.
I am terrified to have the surgery. It is a scary thing for me. I am not looking forward to having them cut me open. No, really cutting. They are not going to be able to do the arthroscopic surgery they usually do. The doctor is going to have to cut open my shoulder. Actually, it will be in my arm pit but there will be a scar on the front too. Cutting anyone with EDS open is dangerous because of the lack of collagen reproduction at a normal rate. So, it will take longer for my cut to heal....not to mention the actual shoulder work. I have been told that I will be in my arm "thing" for at least 6 weeks and the physical therapy will be longer. I have read some accounts that say it takes more than a full year to get all of the motion back and some still have pain.
At this point, I am scared to do it, but hoping this will help. I was told that if I don't do it, I will have pain and it will get worse. If I do it, then there is a chance at a better life with my shoulder and pain. Hopefully it will be for the better, but I am sure it will not be worse.
I will check back in as I get closer to the day. I am scared and will be looking for support here.
01 November 2010
New Blog
I have started a new blog.....I will only post here if I am having EDS issues. Right now, I seem to be having more fun blogging about my boys and daily life here in our home. So, if you are following me...for fun or to see what is going on in my world.......please go to the following blog and become a follower.
http://snipandsnailandpuppydogtail.blogspot.com/
http://snipandsnailandpuppydogtail.blogspot.com/
Ben Heart Update
I just wanted to post a quick update for all my family and friends who have been praying for Ben.
I spoke with the cardiologist today. They got the results from the 24 hour heart monitor. He said that Ben's heart rate is elevated, but it did fluctuate. The important thing is that it did change with activity. Ben's little heart just runs like a hummingbird. His heart function is normal. The doctor would like me to take Ben to see the Heart Rate specialist in 3 months. I was told that Ben's high heart rate is abnormal, but since he is doing better and it is a constant high we are not going to push the panic button now. BUT, it is not something we are just going to forget about either. So, we are going to monitor him for problems and see where we are in 3 months.
We spent the weekend out in Holyoke, which usually triggers all the problems we have with Ben. (We have actually debated not moving because of it.) This time Ben was great. The rest of us are a little snotty, but not Ben. He is doing super. I think that after seeing the pulmonologist/allergist and getting his allergy medicine, we are doing much better. I am so happy to not be worrying about him after this trip.
I am starting to feel better about Ben and all the health problems we have had this summer. I think we might be on the other side of this thing.
Thank you all for your support and prayers. I fully believe in the power of prayer. Thank all of you and God for the wonderful outcome.
I spoke with the cardiologist today. They got the results from the 24 hour heart monitor. He said that Ben's heart rate is elevated, but it did fluctuate. The important thing is that it did change with activity. Ben's little heart just runs like a hummingbird. His heart function is normal. The doctor would like me to take Ben to see the Heart Rate specialist in 3 months. I was told that Ben's high heart rate is abnormal, but since he is doing better and it is a constant high we are not going to push the panic button now. BUT, it is not something we are just going to forget about either. So, we are going to monitor him for problems and see where we are in 3 months.
We spent the weekend out in Holyoke, which usually triggers all the problems we have with Ben. (We have actually debated not moving because of it.) This time Ben was great. The rest of us are a little snotty, but not Ben. He is doing super. I think that after seeing the pulmonologist/allergist and getting his allergy medicine, we are doing much better. I am so happy to not be worrying about him after this trip.
I am starting to feel better about Ben and all the health problems we have had this summer. I think we might be on the other side of this thing.
Thank you all for your support and prayers. I fully believe in the power of prayer. Thank all of you and God for the wonderful outcome.
27 October 2010
miserable
I feel down right miserable. I have got some cold thing that is killing me...okay that is exaggeration. But, I am feeling pretty bad.
I did manage to get through Ben's Halloween party. It was awesome. He is going to be Tigger for Halloween. He loved it and was so cute for his party. He did great trick-or-treating in the school. But, he did get rather warm...his poor little cheeks turned run poor kid.
I love my family, but I am ready to sleep.
I did manage to get through Ben's Halloween party. It was awesome. He is going to be Tigger for Halloween. He loved it and was so cute for his party. He did great trick-or-treating in the school. But, he did get rather warm...his poor little cheeks turned run poor kid.
I love my family, but I am ready to sleep.
25 October 2010
I Can
I can be a good Mom and Wife. I feel as if I have been swimming in a pool of syrup, keeping me from being who I want to be.
My house is not in the best condition that it could be, but it is getting there. I have never been a great housekeeper. And, it has really bothered me. I have let it get out of hand at times and then don't know where to start. A dear friend turned me onto Flylady.com and that has helped tremendously. It is a great guide to find a place to start. It has also helped me to start at one place and not feel like I have to do it all at one time. I now have a routine to keep the basics clean and I can keep going to get through the rest of the junk. It is going to be so nice to have my house clutter free by Christmas. It is also nice because when we do decide to move, it will be great to be able to pick up and move what I want to take and not move junk.
I guess I am feeling pretty good because I got the boys to school on time (fed and dressed well)....picked up a package from a friend....put together a great dinner in the crockpot....empty the dishwasher....and start a load of laundry. All of this before 10AM. I am feeling pretty good about it. It also helps that everyone slept until time for the alarm to go off. Yeah...it was awesome.
I am feeling great....life is good. God is great and I give him thanks for all that he has given to me.
Dinner:
http://family.go.com/food/recipe-cp-629856-chicken-and-sweet-potato-stew-t/
My house is not in the best condition that it could be, but it is getting there. I have never been a great housekeeper. And, it has really bothered me. I have let it get out of hand at times and then don't know where to start. A dear friend turned me onto Flylady.com and that has helped tremendously. It is a great guide to find a place to start. It has also helped me to start at one place and not feel like I have to do it all at one time. I now have a routine to keep the basics clean and I can keep going to get through the rest of the junk. It is going to be so nice to have my house clutter free by Christmas. It is also nice because when we do decide to move, it will be great to be able to pick up and move what I want to take and not move junk.
I guess I am feeling pretty good because I got the boys to school on time (fed and dressed well)....picked up a package from a friend....put together a great dinner in the crockpot....empty the dishwasher....and start a load of laundry. All of this before 10AM. I am feeling pretty good about it. It also helps that everyone slept until time for the alarm to go off. Yeah...it was awesome.
I am feeling great....life is good. God is great and I give him thanks for all that he has given to me.
Dinner:
http://family.go.com/food/recipe-cp-629856-chicken-and-sweet-potato-stew-t/
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