I have started a new blog.....I will only post here if I am having EDS issues. Right now, I seem to be having more fun blogging about my boys and daily life here in our home. So, if you are following me...for fun or to see what is going on in my world.......please go to the following blog and become a follower.
http://snipandsnailandpuppydogtail.blogspot.com/
01 November 2010
Ben Heart Update
I just wanted to post a quick update for all my family and friends who have been praying for Ben.
I spoke with the cardiologist today. They got the results from the 24 hour heart monitor. He said that Ben's heart rate is elevated, but it did fluctuate. The important thing is that it did change with activity. Ben's little heart just runs like a hummingbird. His heart function is normal. The doctor would like me to take Ben to see the Heart Rate specialist in 3 months. I was told that Ben's high heart rate is abnormal, but since he is doing better and it is a constant high we are not going to push the panic button now. BUT, it is not something we are just going to forget about either. So, we are going to monitor him for problems and see where we are in 3 months.
We spent the weekend out in Holyoke, which usually triggers all the problems we have with Ben. (We have actually debated not moving because of it.) This time Ben was great. The rest of us are a little snotty, but not Ben. He is doing super. I think that after seeing the pulmonologist/allergist and getting his allergy medicine, we are doing much better. I am so happy to not be worrying about him after this trip.
I am starting to feel better about Ben and all the health problems we have had this summer. I think we might be on the other side of this thing.
Thank you all for your support and prayers. I fully believe in the power of prayer. Thank all of you and God for the wonderful outcome.
I spoke with the cardiologist today. They got the results from the 24 hour heart monitor. He said that Ben's heart rate is elevated, but it did fluctuate. The important thing is that it did change with activity. Ben's little heart just runs like a hummingbird. His heart function is normal. The doctor would like me to take Ben to see the Heart Rate specialist in 3 months. I was told that Ben's high heart rate is abnormal, but since he is doing better and it is a constant high we are not going to push the panic button now. BUT, it is not something we are just going to forget about either. So, we are going to monitor him for problems and see where we are in 3 months.
We spent the weekend out in Holyoke, which usually triggers all the problems we have with Ben. (We have actually debated not moving because of it.) This time Ben was great. The rest of us are a little snotty, but not Ben. He is doing super. I think that after seeing the pulmonologist/allergist and getting his allergy medicine, we are doing much better. I am so happy to not be worrying about him after this trip.
I am starting to feel better about Ben and all the health problems we have had this summer. I think we might be on the other side of this thing.
Thank you all for your support and prayers. I fully believe in the power of prayer. Thank all of you and God for the wonderful outcome.
27 October 2010
miserable
I feel down right miserable. I have got some cold thing that is killing me...okay that is exaggeration. But, I am feeling pretty bad.
I did manage to get through Ben's Halloween party. It was awesome. He is going to be Tigger for Halloween. He loved it and was so cute for his party. He did great trick-or-treating in the school. But, he did get rather warm...his poor little cheeks turned run poor kid.
I love my family, but I am ready to sleep.
I did manage to get through Ben's Halloween party. It was awesome. He is going to be Tigger for Halloween. He loved it and was so cute for his party. He did great trick-or-treating in the school. But, he did get rather warm...his poor little cheeks turned run poor kid.
I love my family, but I am ready to sleep.
25 October 2010
I Can
I can be a good Mom and Wife. I feel as if I have been swimming in a pool of syrup, keeping me from being who I want to be.
My house is not in the best condition that it could be, but it is getting there. I have never been a great housekeeper. And, it has really bothered me. I have let it get out of hand at times and then don't know where to start. A dear friend turned me onto Flylady.com and that has helped tremendously. It is a great guide to find a place to start. It has also helped me to start at one place and not feel like I have to do it all at one time. I now have a routine to keep the basics clean and I can keep going to get through the rest of the junk. It is going to be so nice to have my house clutter free by Christmas. It is also nice because when we do decide to move, it will be great to be able to pick up and move what I want to take and not move junk.
I guess I am feeling pretty good because I got the boys to school on time (fed and dressed well)....picked up a package from a friend....put together a great dinner in the crockpot....empty the dishwasher....and start a load of laundry. All of this before 10AM. I am feeling pretty good about it. It also helps that everyone slept until time for the alarm to go off. Yeah...it was awesome.
I am feeling great....life is good. God is great and I give him thanks for all that he has given to me.
Dinner:
http://family.go.com/food/recipe-cp-629856-chicken-and-sweet-potato-stew-t/
My house is not in the best condition that it could be, but it is getting there. I have never been a great housekeeper. And, it has really bothered me. I have let it get out of hand at times and then don't know where to start. A dear friend turned me onto Flylady.com and that has helped tremendously. It is a great guide to find a place to start. It has also helped me to start at one place and not feel like I have to do it all at one time. I now have a routine to keep the basics clean and I can keep going to get through the rest of the junk. It is going to be so nice to have my house clutter free by Christmas. It is also nice because when we do decide to move, it will be great to be able to pick up and move what I want to take and not move junk.
I guess I am feeling pretty good because I got the boys to school on time (fed and dressed well)....picked up a package from a friend....put together a great dinner in the crockpot....empty the dishwasher....and start a load of laundry. All of this before 10AM. I am feeling pretty good about it. It also helps that everyone slept until time for the alarm to go off. Yeah...it was awesome.
I am feeling great....life is good. God is great and I give him thanks for all that he has given to me.
Dinner:
http://family.go.com/food/recipe-cp-629856-chicken-and-sweet-potato-stew-t/
24 October 2010
Home
Home again, home again, jiggitty jig.
It is nice to be our house again. We went to Holyoke for the weekend and it was eventful. We went and looked at houses. There is nothing out there that I would like to buy or live in. They all need a bit of work. I am so looking forward to moving as soon as we can, but I do not want to jump into a house that needs work.
We still need to put our house on the market.....and I was all for it, but now I am not so sure. I want to scream because I am so confused. I want to make sure that Ben is healthy. So, not only is that a problem, but I don't want to jump into a house. I want to make sure it is something I want to live in for the rest of my life.
I checked the price of our house on Zillow.....WHAT!!!!! It is way lower than I thought it would be these days. We went from a 3 bed 2 bath to a 5 bed 3 bath and our house has only appreciated $8,000 since we bought it....and we put all that work into it. We might be able to get what we put into the basement, but nothing else. We have done so much to this house. How can this happen....we have been here almost 6 years.
I want to move out there to be near the family and friends. We really need the support with all that is going on in our lives. Ben could do worse there, but we do not know. I know that, for me, that it would be better for me. I can use all the help I can get. I have realized this weekend that things are harder for me than I thought. My hands are getting worse. My left hand feels like I have lost the padding on the first and middle finger. I am also having massive pain in my right thumb area.
I know that I am really rambling and not sure what is what. Nothing makes sense right now. I want to move, I want to do what is right by my family, I want to be near our friends, I want to live in a house that I can live in for the rest of my life.
Pastor reminded us today that we have what we have by the grace of God. God will watch over all of us and give us what he knows we need. I am giving this up to God and praying for some guidance.
It is nice to be our house again. We went to Holyoke for the weekend and it was eventful. We went and looked at houses. There is nothing out there that I would like to buy or live in. They all need a bit of work. I am so looking forward to moving as soon as we can, but I do not want to jump into a house that needs work.
We still need to put our house on the market.....and I was all for it, but now I am not so sure. I want to scream because I am so confused. I want to make sure that Ben is healthy. So, not only is that a problem, but I don't want to jump into a house. I want to make sure it is something I want to live in for the rest of my life.
I checked the price of our house on Zillow.....WHAT!!!!! It is way lower than I thought it would be these days. We went from a 3 bed 2 bath to a 5 bed 3 bath and our house has only appreciated $8,000 since we bought it....and we put all that work into it. We might be able to get what we put into the basement, but nothing else. We have done so much to this house. How can this happen....we have been here almost 6 years.
I want to move out there to be near the family and friends. We really need the support with all that is going on in our lives. Ben could do worse there, but we do not know. I know that, for me, that it would be better for me. I can use all the help I can get. I have realized this weekend that things are harder for me than I thought. My hands are getting worse. My left hand feels like I have lost the padding on the first and middle finger. I am also having massive pain in my right thumb area.
I know that I am really rambling and not sure what is what. Nothing makes sense right now. I want to move, I want to do what is right by my family, I want to be near our friends, I want to live in a house that I can live in for the rest of my life.
Pastor reminded us today that we have what we have by the grace of God. God will watch over all of us and give us what he knows we need. I am giving this up to God and praying for some guidance.
20 October 2010
Not sure
It has been one heck of a day.........
It started off well enough. I took the boys to school and came home to enjoy myself. I started on my cross stitch and something reminded me that I needed to call and get the windshield replaced. I called and got it set up....then I was told I had a $250 deductible for the windshield. WHAT!!!! When I switched the insurance to USAA from State Farm, I was told that the windshield was covered under the glass coverage. I spent an hour arguing with them about it. Ended up I need the windshield replaced before we go to Holyoke tomorrow. It is so pitted that I can hardly see through it at dust. So, I filed a complaint/claim so I might be able to get the money back.
I then remembered that I needed to call the Vision Insurance to make sure I was covered. I called and was told that there was no vision on Matt insurance. Insurance that we are paying through the nose for these days. I asked questions about the AOG's policy and then was told that they do not have vision listed on the things that they are covered. I called the AOG and talked to Janice then. She said that she had just been on the phone with them earlier that day and the underwriting for the AOG insurance had not been completed yet. So, if I want to get my eyes checked and my new glasses, I have to pay out of pocket and get reimbursed. Well, how the heck can I do that? I just paid $250 to get the windshield fixed....so, now the windshield will be new and pretty to look out, but I still won't be able to see clearly because I do not have my glasses.
I went and picked Ben up from school and we had lunch. After I put him down for a nap, the peds office called and let me know that I needed to take Ben in to get his blood work done today. I was told that the Quest office was the place to go for my insurance. So, after freaking out a minute about my 3-yr old having to get blood drawn. I started to make and appt.....I first thought about doing it after I picked Max up, but then decided that it might be more traumatic for Max to see it than to have it done. So, I made and appt with Quest for 2:10. I got there about 10 minutes early, but they made us wait. When I did get up to the desk to fill out paper work, I was told that they did not take my insurance. So, I had to go somewhere else. At least quest told me where to go and it was not that far away. Ben and I rushed over because I had to pick Max up at 3:00. We got to the office and the woman behind the counter was so stinking slow I thought I might just loose it. Finally she told us to come back....guess who was drawing the blood. HER. Finally she got started and Ben was a champ. He sat in my lap and watched as the needle went in and the nurse fished around for a vein. 4 vials later we were out the door with 2 urine collection things. (still not sure how was are going to do that out of town this weekend)
I did make it to school to pick Max up in time. Then, realized that today was the fundraiser pick up day. AAAHHHHH....I could have gone earlier and picked it up, but since it had slipped my mind I had to stand in line with all these kids and moms. 20 minutes to pick up one little bag of candy my mom ordered for the boys.
When I got home I started to cry from the sheer pressure of the day. Max made me feel horrible for it when he started to cry too. I stopped, but still zoned out a bit. Until, I realized it was 5 pm and I had not even thought about dinner. Chinese it was tonight. Not healthy, but at least I fed them.
They are currently picking up their things before bed. I am looking forward to that so I can finally let it all out and really cry. It will do me good to just get it over with so I can start again tomorrow.
So, I am not sure if it is a good day because I handled it all without a major break or if it was a bad day because I had to handle all of it.
It started off well enough. I took the boys to school and came home to enjoy myself. I started on my cross stitch and something reminded me that I needed to call and get the windshield replaced. I called and got it set up....then I was told I had a $250 deductible for the windshield. WHAT!!!! When I switched the insurance to USAA from State Farm, I was told that the windshield was covered under the glass coverage. I spent an hour arguing with them about it. Ended up I need the windshield replaced before we go to Holyoke tomorrow. It is so pitted that I can hardly see through it at dust. So, I filed a complaint/claim so I might be able to get the money back.
I then remembered that I needed to call the Vision Insurance to make sure I was covered. I called and was told that there was no vision on Matt insurance. Insurance that we are paying through the nose for these days. I asked questions about the AOG's policy and then was told that they do not have vision listed on the things that they are covered. I called the AOG and talked to Janice then. She said that she had just been on the phone with them earlier that day and the underwriting for the AOG insurance had not been completed yet. So, if I want to get my eyes checked and my new glasses, I have to pay out of pocket and get reimbursed. Well, how the heck can I do that? I just paid $250 to get the windshield fixed....so, now the windshield will be new and pretty to look out, but I still won't be able to see clearly because I do not have my glasses.
I went and picked Ben up from school and we had lunch. After I put him down for a nap, the peds office called and let me know that I needed to take Ben in to get his blood work done today. I was told that the Quest office was the place to go for my insurance. So, after freaking out a minute about my 3-yr old having to get blood drawn. I started to make and appt.....I first thought about doing it after I picked Max up, but then decided that it might be more traumatic for Max to see it than to have it done. So, I made and appt with Quest for 2:10. I got there about 10 minutes early, but they made us wait. When I did get up to the desk to fill out paper work, I was told that they did not take my insurance. So, I had to go somewhere else. At least quest told me where to go and it was not that far away. Ben and I rushed over because I had to pick Max up at 3:00. We got to the office and the woman behind the counter was so stinking slow I thought I might just loose it. Finally she told us to come back....guess who was drawing the blood. HER. Finally she got started and Ben was a champ. He sat in my lap and watched as the needle went in and the nurse fished around for a vein. 4 vials later we were out the door with 2 urine collection things. (still not sure how was are going to do that out of town this weekend)
I did make it to school to pick Max up in time. Then, realized that today was the fundraiser pick up day. AAAHHHHH....I could have gone earlier and picked it up, but since it had slipped my mind I had to stand in line with all these kids and moms. 20 minutes to pick up one little bag of candy my mom ordered for the boys.
When I got home I started to cry from the sheer pressure of the day. Max made me feel horrible for it when he started to cry too. I stopped, but still zoned out a bit. Until, I realized it was 5 pm and I had not even thought about dinner. Chinese it was tonight. Not healthy, but at least I fed them.
They are currently picking up their things before bed. I am looking forward to that so I can finally let it all out and really cry. It will do me good to just get it over with so I can start again tomorrow.
So, I am not sure if it is a good day because I handled it all without a major break or if it was a bad day because I had to handle all of it.
18 October 2010
Ben
So, we are home and the boys are tucked in bed sound asleep. It is nice to have a quiet night. I might be able to relax/release now.
I took Ben to see the Cardiologist. It was so scary. The doctor was very nice so it was easier. He had an EKG before we saw the doc and he seemed pretty happy with it. We chatted for a few minutes and I gave him background and history. Freaked me out when doctor decided to do an ecocardiogram right away. We got to see his heart on the screen. From my lay person's eye.....it seems that it was doing all that it should. We were able to rule out EDS for him and masses or tumors. That is all good.
Tonight and for the next 24 hours, Ben is wearing a heart monitor. It is a little creepy to see him walking around with this little box attached to him. It does not seem to be bothering him any.....he ran around with Max tonight acting like nothing happened. It was kinda funny to see him keep stopping to move it up and then go again. Poor guy.
I am happy we have ruled some things out, but it is not totally reassuring. There are so many other things it could be. The doctor thinks it could be a heart infection. He said that we are starting with the easy tests...it will be less traumatic for Ben. Which is great, but I wonder if it will get us to the end result soon enough. I know that we are ruling out the things that are easy to test for...that is great....why can't we test for it all? We will most likely be getting blood drawn next week to check for infection, thyroid and a few other things.
Wait and see.....give it to the Lord and he will protect us.
I took Ben to see the Cardiologist. It was so scary. The doctor was very nice so it was easier. He had an EKG before we saw the doc and he seemed pretty happy with it. We chatted for a few minutes and I gave him background and history. Freaked me out when doctor decided to do an ecocardiogram right away. We got to see his heart on the screen. From my lay person's eye.....it seems that it was doing all that it should. We were able to rule out EDS for him and masses or tumors. That is all good.
Tonight and for the next 24 hours, Ben is wearing a heart monitor. It is a little creepy to see him walking around with this little box attached to him. It does not seem to be bothering him any.....he ran around with Max tonight acting like nothing happened. It was kinda funny to see him keep stopping to move it up and then go again. Poor guy. 
I am happy we have ruled some things out, but it is not totally reassuring. There are so many other things it could be. The doctor thinks it could be a heart infection. He said that we are starting with the easy tests...it will be less traumatic for Ben. Which is great, but I wonder if it will get us to the end result soon enough. I know that we are ruling out the things that are easy to test for...that is great....why can't we test for it all? We will most likely be getting blood drawn next week to check for infection, thyroid and a few other things. Wait and see.....give it to the Lord and he will protect us.
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