tag:blogger.com,1999:blog-6458304261051011337.post2683333763620008984..comments2023-05-02T08:11:32.560-06:00Comments on My Ehlers-Danlos Syndrome Adventure: Doctor visitCharlee Klevehttp://www.blogger.com/profile/02581752550902631297noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-6458304261051011337.post-72144369326916251222010-06-05T22:27:19.766-06:002010-06-05T22:27:19.766-06:00I am concerned about the possibility of you having...I am concerned about the possibility of you having surgery by an orthopedist who is well meaning, but not knowledgeable about EDS. You might want to go on some of the EDS boards and try to find a doctor who has done surgery on people with EDS. As I understand it, shoulder surgery is not done quite the same with EDS. You could end up having the surgery and dislocating within a year or so because it doesn't hold. Don't mean to scare or depress you, but this has been the experience of many people with EDS with surgeons who don't understand EDS.Anonymousnoreply@blogger.com